tag:blogger.com,1999:blog-5358767786631167546.post2839204637686800986..comments2023-10-24T07:52:44.345-04:00Comments on Angiomas Suck.: Of Cat and ScansKelleyhttp://www.blogger.com/profile/15896519648818458407noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5358767786631167546.post-16888984462954452952012-10-28T02:22:10.191-04:002012-10-28T02:22:10.191-04:00Just found your blog, and thank you so very much f...Just found your blog, and thank you so very much for sharing. It's late, I should be in bed. My neurologist lectures me about the importance of sleep. Some nights I just can't make myself go to sleep. I just need to be awake and alive for a bit longer some days.<br />The mental image of your "Cat scans" will stay in my mind and make me smile for as long as my brain can hold the memory. Thank you.<br />Hang in there when searching for a seizure medicine that works. It has taken more tries than I would have liked, but I think we may have found one that works at an acceptable level without trying to kill me. Not trying to kill me is a quality I appreciate in my medications. :)<br />I do not have multiple leisions, just the one. I am grateful for that. It lives in the heart of all that makes me "Me". It could be removed without killing my body, but the odds of if rebooting me and leaving my family with a 55 year old woman who doesn't know them, has no memory of them, or how to walk, talk, live is unacceptable to me. So we cope with migraines, seizures, weakness on the right side of my body, clumsiness, occasional confusion, frequent memory loss and just forget about math. But then, I never really liked math anyway. It's not so bad, this life. I just have days, like today when I just cannot make myself willing close my eyes and quit the day. Rebellious moment, I suppose. But now, having read of the struggles of others, and being encouraged by your honesty and humor (and yes they DO suck), I think I'll slip into bed and fall asleep praying for children and their mommies who fight these stupid, stupid intruders that cowardly hide in the most personal of places, the brain. <br />How rude. I mean, no one invited them to grow there. There should be trespassing laws about such things. Seriously. I've never been able to communicate with anyone who's life has been touched by this before. There are just some things you cannot say to your husband, your children. How can I tell them how angry I am? How frustrating it is to attempt some small activity that used to come easily, only to discover it has been vetoed by this tiny dictator that is slowly creeping like lava over my favorite things. I cannot believe I gave up swearing. Talk about bad timing. On the bright side, I have 3 cats and every time I look at them now, I will picture some poor soul trying to get them to cooperate long enough to scan them. I love it. It has been a much needed gift to me today. So, I want to give a gift to you.<br />As long as I last, as long as I'm able, I will be praying for you and your son. He's the age of our youngest daughter. It will make it easier for me to keep track and remember. God keep you safe and well tonight. And thank you again for the blog. Denisehttps://www.blogger.com/profile/08300604331174641029noreply@blogger.comtag:blogger.com,1999:blog-5358767786631167546.post-56038153511977552972012-06-23T17:49:43.245-04:002012-06-23T17:49:43.245-04:00Hey Tiffany, SO sorry to hear what you're goin...Hey Tiffany, SO sorry to hear what you're going through. But we can certainly relate. If you want, it's probably easier to email me-suckocity@live.com-and I'd be happy to share what I can. Hang in there...Kelleyhttp://angiomassuck.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5358767786631167546.post-51732635802561093872012-06-23T17:47:31.537-04:002012-06-23T17:47:31.537-04:00Thanks, C. Our neuro is pretty good about this stu...Thanks, C. Our neuro is pretty good about this stuff. I think it seems like he's shrugging it off, but he actually knows our son far too well. He keeps things way low key so not to upset him, and this would have been upsetting. But, you know, we've decided to look at it as just news. Neither good nor bad in the huge scope of things. It's just, it is what it is...Kelleyhttp://angiomassuck.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-5358767786631167546.post-13395249952091223062012-06-22T22:22:49.252-04:002012-06-22T22:22:49.252-04:00Just found your blog. My oldest son (13) was recen...Just found your blog. My oldest son (13) was recently diagnosed with a 1.3cm CM in the right temporal lobe. He began having multiple daily seizures, along with memory loss, personality changes, etc. We still haven't gotten very good information from the neurologist and he certainly doesn't seem very concerned, which is extremely frustrating. Our son has tried 2 anti-seizure meds now- the first one was horrible and the 2nd one is reducing the number of seizures, but he still has 3 or more each week, plus side effects of the medicine.<br /><br />I'm especially interested in your comment about puberty being a dangerous time for the lesions. Can you tell me more or elaborate on anything you've read/studied/heard about that?? I feel like I'm doing all the research myself since the dr. only gives out meds. I'm very thankful and encouraged to come across your blog. <br /><br />Thank you! ~ and congrats to your grad!Tiffany Fhttps://www.blogger.com/profile/13806380087973695958noreply@blogger.comtag:blogger.com,1999:blog-5358767786631167546.post-31455107112738555812012-06-08T14:14:49.874-04:002012-06-08T14:14:49.874-04:00What disappointing news to receive right before hi...What disappointing news to receive right before hi graduation. I'm sorry, I don't know what else to say. It's especially hard when news that's devastating to you is shrugged off by the messenger.Crystal https://www.blogger.com/profile/07541557479055817343noreply@blogger.com