Friday, August 26, 2011

Don't Forget!


From the Angioma Alliance blog:

Cavernous Angioma Conference in Santa Fe!

Please join us on Saturday, August 27th, 2011 to hear presentations by neurologist, radiologists, neurosurgeons, and affected individuals. The conference will be held from 10:00 AM to 2:00 PM at the Courtyard by Marriott Santa Fe, 3347 Cerrillos Road, Santa Fe, New Mexico. Call Beth with questions at 505-272-3194 or email babaca@salud.unm.edu.

Thursday, August 25, 2011

Don't Forget!


Take part in http://www.macysinc.com/shopfo​racause/ August 27th!

You can purchase the tickets from Rachel Hart (RHart@AngiomaAlliance.org) for $5 through PayPal or check. They can be used for online shopping as well!

www.macysinc.com
On Saturday, August 27, 2011, Macy’s will host its 6th annual Shop for a Cause benefiting charities nationwide. Since 2006, Shop for a Cause has raised more than $38 million for charities across the country. This is your opportunity to be part of the excitement.

Wednesday, August 17, 2011

Tell Your Story

Check. It. Out.:


To celebrate the publication of Life…The Reader’s Digest Version: Great Advice, Simply PutReader’s Digest will host the “Your Life…” contest. The grand prize winner will receive $25,000, and ten runner-ups will win $2,500. The eleven honorees’ stories will also be published on ReadersDigest.com.
In addition, Facebook fans will have the chance to vote for their favorite stories. The most popular Facebook entry will also receive $2,500. To enter, submit your life story in 150 words or less on Reader’s Digest‘s Facebook page. The deadline has been set for November 1st. Glee actress Jane Lynch submitted the first entry in the contest. 

Tuesday, August 16, 2011

Cavernous Angioma Conference in Santa FE


From the Angioma Alliance blog:

Please join us on Saturday, August 27th, 2011 to hear presentations by neurologist, radiologists, neurosurgeons, and affected individuals. The conference will be held from 10:00 AM to 2:00 PM at the Courtyard by Marriott Santa Fe, 3347 Cerrillos Road, Santa Fe, New Mexico. Call Beth with questions at 505-272-3194 or email babaca@salud.unm.edu.
Awesome!

Friday, August 12, 2011

Shop Til You Drop!


Don't forget to take part in http://www.macysinc.com/shopfo​racause/ August 27th!

You can purchase the tickets from Rachel Hart (RHart@AngiomaAlliance.org) for $5 through PayPal or check. They can be used for online shopping as well!
www.macysinc.com
On Saturday, August 27, 2011, Macy’s will host its 6th annual Shop for a Cause benefiting charities nationwide. Since 2006, Shop for a Cause has raised more than $38 million for charities across the country. This is your opportunity to be part of the excitement.

Charity Poker Tournament

From Angioma Alliance's blog:

PokerTournamentAnnouncement

Wednesday, August 10, 2011

Weird, isn't it?





So. Our neurosurgeon appointment for BBB kept getting rescheduled. They'd call, pushing our less urgent visit off for a few more weeks, because he'd been called away for emergency surgery. It happened more than a few times too. And we were pleased.

We were less urgent. Now that is exciting.

Weird, isn't it, when you've got some MRI results about lesion bleeding you want to talk about and it's labeled less urgent. And you feel good about that. Really good.

But that's just how it rolls, this disorder. Eh?

Because, you know, being on the other side, the emergency side, is horrific. No one wants to be there. A lot of us have. So yeah, cool, reschedule your hearts away. I just hope whoever was the reason behind this scheduling is okay. I really, really do.

The news was all right, too, when we did get in. Hopeful even. So, we'll take that too. Gladly.


Monday, August 1, 2011

We've lost yet another loved one.

Next weekend, new posts. Until then, I must go.