Showing posts with label angiomas suck. Show all posts
Showing posts with label angiomas suck. Show all posts

Thursday, October 20, 2011

Reader's Digest Tell Your Story




Read Hannah's story about her daughter's struggles, or share your own, and definitely don't forget to vote on your favorites!


To celebrate the publication of Life…The Reader’s Digest Version: Great Advice, Simply PutReader’s Digest is hosting the “Your Life…” contest. The grand prize winner will receive $25,000, and ten runner-ups will win $2,500. The eleven honorees’ stories will also be published on ReadersDigest.com.
In addition, Facebook fans will have the chance to vote for their favorite stories. The most popular Facebook entry will also receive $2,500. To enter, submit your life story in 150 words or less on Reader’s Digest‘s Facebook page. The deadline has been set for November 1st. Glee actress Jane Lynch submitted the first entry in the contest.
As Hannah's story shows, this is a great way to spread awareness and share your experiences. Go!

Thursday, November 4, 2010

Why, Thank You!

A huge thank you to Marguerite Zelle at The Kindle Blog Report for her review of our AS blog here. She gave us a wonderful "Yes!" Huge thank you's to everyone who's reviewed us at Amazon (here) too. We luff you so.



Our mission is to spread awareness about cavernous angiomas. As long as there's no cure, we have to fight the damn things. But people can't fight something they don't even know exists, right? So every review, every link, helps get our message out there, and we can't tell you how much we appreciate your help.

So thank you. Now...for



Remember, we're on Kindle here. And for our Christmas gift this year, if you have an Amazon account, we'd love you to consider dropping us a review as well. It costs nothing...and, um...it would make us reallyyyy happy. Love us, hate us, it's all good. We just need people to fight. :)

Friday, October 8, 2010

Angiomas Suck on Amazon!



To subscribe to us on Kindle now, you can go here. And as always, all $$$$ earned goes to charity. Yes!

Thursday, September 16, 2010

Angiomas Suck...#1

The Manimal Challenge on Travel Channel's Man Vs. Food


Angiomas suck:

Whether it's a result of brain damage from his lesions bleeding, surgeries, or just for some unknown reason, BBB is unable to really tell when and if he's hungry or full. It's a ginormous problem in that he'll eat and eat and EAT, sometimes until he's physically sick. (Have I got a story for you about a breakfast buffet, my new denim jacket, and a rental car during one trip out to Houston, TX...) He also feels achingly hungry all the time. This leads to him overeating and even his resorting to stealing food. Considering we have to watch his weight in order to ensure his medications' effectiveness (and our food bills--hello), this can prove challenging for all of us. As in sucktastically challenging.

But Life's Good Anyway:

Who knows. Up his exercise regime and the kid just might have himself one kickass career as a professional eater.

Right now he's focused on tackling the Manimal Challenge in Arundel, ME that he saw last night on Travel Channel's Man Vs. Food. (Need I add it's his favorite food show??? And that even though he's only eighteen, the boy could totally eat Adam under the table already?)  The Tradewinds Cafe is less than an hour away from us, and he's hellbent on heading up there next summer. Never mind the fame and glory such an accomplishment would surely bring, there's a free Manimal t-shirt in it for him...now that's pretty good.

Link courtesy of Ibetyouwont.com