Tuesday, October 12, 2010

Patti's Journey

Cavernous angiomas suck. I know, I know. I sound like a broken record. But they do. What doesn't suck is the people I get to meet-esp the people I get to meet thanks to this blog.

I love the emails, the facebook comments-just when people reach out and say, "Hey, I'm fighting too."

It's pretty cool.

I want to thank Patti, who's letting me share this with you:

You can read more about Patti and her experience in this article at the American Association of Neurological Surgeons.

She also made this video. I love this. I do:

Thanks, Patti. And if anyone else out there has anything they'd like to share, I'd love to hear from you too!


  1. I think it's great that so many people have made their stories public. Of course, like everyone else, I had never even heard what a cavernoma was. My husband wrote it down because we kept forgetting what it was...all we were thinking was 'will I live!?'.

    I really hope enough of us blogging/documenting/talking about this can raise awareness about cavernous angiomas.

  2. You know, if just one person who's looking finds us...well, then it's all worth it. :)

  3. It's incredible that after all that Patti has been thru, she still has the energy and perseverance to tell her story, to be heard and to be recognized as a spokesperson for neuro-vascular disorders, never giving up, never quitting and never allowing us to be classified as an orphan disorder.
    I applaud you Patti.......SERIOUSLY!

  4. Agreed. She's amazing. Just amazing, and wonderful.

  5. THANK YOU, Mike and Kelley for your very kind comments! :)
    And Callebresella, I too carried around a scratch paper w/my original diagnosis, "arteriovenous malformation" (back when CM's were called cryptic AVM's), not having a clue what it meant, but being scared out of my wits!
    Keep up w/your great blogs and Mike, "thank you" for our 20 yrs. of friendship/survivorship!


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