Fundraiser Event!

Yum! How we love this!!! It's not donuts, but still...A Flapjack Fundraiser!

When:
Saturday, July 31, 2010,  in Allentown, PA from 8 am to 10 am

Where:
Flapjack Fundraiser
Applebees
1510 Cedar Crest Blvd Allentown, PA

Join the scarves 4CCM1 girls at Cedar Crest Applebees for a flapjack breakfast and raffle to benefit Angioma Alliance. Tickets are $5 and can be purchased by emailing scarves4CCM1@yahoo.com.

Scarves4CCM1 is a group of Springhouse Middle School girls who have been knitting and selling scarves to benefit Angioma Alliance. They are branching out into organizing events and this is their first! Come out and support Kylie, Alexis, Addie, Kamee,Val and Rebecca and have a yummy breakfast, too!

To learn more about the Scarves4CCM1 group, visit http://www.facebook.com/group.php?gid=214295790136&v=wall&ref=ts or http://scarves4ccm1.piczo.com/?cr=2

Alberto Contado Wins

In 2004, Alberto Contado was diagnosed with a cavernous malformation and underwent successful surgery to remove it. In 2010, he's won his third Tour De France.

Congrats.

Let us add him to the People Who Rock.

Angioma Alliance Summer 2010 Newsletter is out!

Check it out. Events. Fundraisers. Tons of info. And two more medications that just might target cavernous malformations.

Nice.

International Patient Registry

Let's celebrate! There's now an international patient registry for those with CCMs. YES!! To register, see the latest research news, or just check it out, go here.

And an enormous thank you to those who took the time and effort to do this for us...many donuts we wish for you...and I wouldn't even ask you to share, for that is how much I love you for doing this.

Red Sox Nation Holds Its Breath

Yes. We at AS are proud, card-carrying members of Red Sox Nation, and we're holding our breath right now for one of our brethren.

Recently, nineteen-year-old Red Sox prospect Ryan Westmoreland was diagnosed with a cavernous malformation and underwent surgery. I remember when I heard I froze, and then sort of crumpled a bit. You see, BBB is just a year younger than Ryan. Though my son's doing well, I know what Ryan and his family are facing right now. So yes. I crumpled a bit.

We, a family who's kicking CCMs butt and fellow members of Red Sox Nation, wish Ryan and his family well. May he recover quickly.

Read more here, here, here, and here.

Research News

Studies with mice show statins just might help cavernous malformations. Those lucky, lucky mice. The better news is The University of Utah announces possible study involving statins and cavernous angiomas in humans.

(Wary) excitement, we have it.

Read more here, here, here, and as always, my favorite newsletter (Angioma Alliance) here.

Oh, hi.

We're under construction. But you all come back when we're done, ya hear now?

Thanks!