Friday, July 30, 2010

Fundraiser Event!

Yum! How we love this!!! It's not donuts, but still...A Flapjack Fundraiser!

Saturday, July 31, 2010,  in Allentown, PA from 8 am to 10 am

Flapjack Fundraiser
1510 Cedar Crest Blvd Allentown, PA

Join the scarves 4CCM1 girls at Cedar Crest Applebees for a flapjack breakfast and raffle to benefit Angioma Alliance. Tickets are $5 and can be purchased by emailing

Scarves4CCM1 is a group of Springhouse Middle School girls who have been knitting and selling scarves to benefit Angioma Alliance. They are branching out into organizing events and this is their first! Come out and support Kylie, Alexis, Addie, Kamee,Val and Rebecca and have a yummy breakfast, too!

To learn more about the Scarves4CCM1 group, visit or

Tuesday, July 27, 2010

Alberto Contado Wins

In 2004, Alberto Contado was diagnosed with a cavernous malformation and underwent successful surgery to remove it. In 2010, he's won his third Tour De France.


Let us add him to the People Who Rock.

Angioma Alliance Summer 2010 Newsletter is out!

Check it out. Events. Fundraisers. Tons of info. And two more medications that just might target cavernous malformations.


Saturday, July 24, 2010

International Patient Registry

Let's celebrate! There's now an international patient registry for those with CCMs. YES!! To register, see the latest research news, or just check it out, go here.

And an enormous thank you to those who took the time and effort to do this for us...many donuts we wish for you...and I wouldn't even ask you to share, for that is how much I love you for doing this.