Showing posts with label Youtube. Show all posts
Showing posts with label Youtube. Show all posts

Wednesday, December 1, 2010

The Children



The children's stories are always the hardest for me. Perhaps because they seem the most complicated cases. Perhaps because they hit too close to home. Perhaps because it all just seems so damn unfair. But what never fails to strike me when I hear these tales is how courageous and strong and hopeful they are, these children. Regardless.

This is one such story on YouTube here.

I remember when my son was first correctly diagnosed. It felt like we were alone. Like no one else knew or understood or cared. No one was going through what we were.

Was it true? No. Not really. I know that now. But then things have changed, of course. Everyone has a computer, Internet. They can speak out through blogs and videos and emails. It's easier now to discover you're not the only one.

Easier, however, is a bit like saying you're almost there when you've just finished mile one in a twenty-six mile marathon, isn't it? You've gone far. You just haven't gone very far, and you definitely haven't gone far enough.

The trick, I suppose, is to keep putting one sneakered foot in front of the other until you kick off from exhaustion or finish the damn race.

Our thoughts, prayers, best wishes, and thanks to this family for sharing their story and speaking out.

Let us keep running, eh?

Link provided courtesy of PattiG.

Sunday, November 21, 2010

A Few Announcements...






In case you haven't noticed, I've added some videos to my sidebar. If you scrawl down, as in wayyyyy down on the right, you'll see that not only do I have a rotating video bar for YouTube but that I've also permanently placed videos by PattiG, Project 2020, and a few others beneath it. I just hope you find them as helpful and inspiring as I did.

And speaking of PattiG, I'd say it's way past about time we officially placed her on Angiomas Suck's People Who Rock list here. Agreed?



We can't thank you enough, Patti, for all you've done. You rock. You completely do.

Tuesday, October 12, 2010

Patti's Journey

Cavernous angiomas suck. I know, I know. I sound like a broken record. But they do. What doesn't suck is the people I get to meet-esp the people I get to meet thanks to this blog.

I love the emails, the facebook comments-just when people reach out and say, "Hey, I'm fighting too."

It's pretty cool.

I want to thank Patti, who's letting me share this with you:



You can read more about Patti and her experience in this article at the American Association of Neurological Surgeons.

She also made this video. I love this. I do:



Thanks, Patti. And if anyone else out there has anything they'd like to share, I'd love to hear from you too!